Happy Birthday Carolynn Rose!!!
Three years ago today, Chrissy gave birth to a very special, beautiful, intelligent little girl.
We love you so much Care-Bear!
Happy Third Birthday Miss Carolynn Rose
Wednesday, July 7, 2010
Monday, July 5, 2010
4th of July Weekend in Pictures
Peekaboo! Lukey sees you!
Saturday July 3, I think I already said we didn't do much this day, BUT, Daddy did set up the Sprinkle Splash & Play Mat for Luke in the back yard & he had a blast playing on it. This picture is when it was on "full blast" which he DID NOT like. We turned the water pressure down & then he got into it. I can see lots of hot summer days spent on this, both this summer & next!
Ahh, that's more like it!
The ubiquitous cups. Luke LOVES cups.
Saturday night after Pap left, Mommy made homemade donuts. The dough had basically flour & water in it, so I figured it wouldn't hurt Luke to try a few bites. I'm still really watching what we let him taste. He liked it but not enough to eat even 1/4 of the little donut.
Sunday, July 4, 2010--Luke's First Independence Day
Our church, The Gathering UMC, met at Little Island Park in Sandbridge for a beach-side service & then some fun in the sun. We had Carolynn with us and we had a good time. We carried WAY more STUFF than we needed, but I like to be prepared!
The water was pretty chill, so Luke didn't even go all the way in. He pretty much hung out in the surf while Carolynn played.
After the beach we went home and everybody took showers & naps.
Pap came over around 5:30 and we grilled hamburgers and then Mommy made more donuts.
Luke went to bed for the night at 8 pm, so he didn't even get a chance to play with sparklers or anything. (The sun is still up @ 8.) When Pap & Amanda left at 9:30, we all set off a handful of leftover wedding sparklers to celebrate.
Monday July 5, yea, he slept in his USA outfit, so I could get decent pics today. He decided to blow raspberries at the camera though.
I did manage to capture one, sideways smile on camera.
Saturday, July 3, 2010
Sunday Update
I figured if I am going to stay caught up I better get this done, even though I have a migraine, so here goes!
Wednesday June 30
I took Tim to work so that Luke and I could have the car. We got an early start & we were at Tom & Peggy's around 8:20. I had been super mega sick to my stomach (from both ends!) the night before & the only reasons we could come up with were 1.pregnant, 2. overate on cheese-less pizza, or 3. overate on cookies w/ dairy in them & was having a reaction myself So, the first thing I did at Tom & Peggy's was to take a pregnancy test to get that out of the way. Negative. Trust me this is not how I'd be announcing it if I were indeed pregnant again!
(On a side note, our only birth control right now is prayer! Ha ha, it wouldn't be the end of the world if we get pregnant & I can't take hormonal BC of any kind. I can't chart to use NFP because I don't get 3 hours of sleep in a row.)
Then Luke & I spent about 2 hours relaxing at their house, I watched t.v. and snoozed on the couch while Luke played with toys on the floor. He also nursed off and on a couple times. About 10:15 we headed over to his 11 am appointment. We were early and got called right in! We had to wait a few minutes to actually see Dr. K (a great GI if you ever need one!) I gave him Luke's history, starting with the episodes on Mother's Day & he suggested Sandifer's before I even finished telling my tale. So we discussed the best way to handle giving Luke his meds and changed his Zantac dose to 3 times a day instead of 2 and that was that.
I had to nurse Luke in the car before I could head home and I was still feeling pretty queasy to my stomach, so I cancelled my plans with Melanie for swimming & then headed home.
At home, Luke and I pretty much just took it easy.
In the afternoon we headed out to pick Tim up from work & then to church for New Member Orientation. That was pretty short & sweet and afterwards we headed to Texas Roadhouse for dinner.
Luke was talking up a storm and had the attention of all the guests dining around us!
We left there with full tummies and with all of us ready for bed!
Thursday July 1
Luke and I slept in a little later than I wanted to and Tim forgot that we had to take him to work again, so our morning was a little rough. We got it all figured out & headed off to the base.
After we dropped Tim off, Luke & I headed to Target. We got some laundry & dish detergent & some more Medela Tender Care Lanolin (what I use to pump w/ & @ $10 a pop that's no small thing!) and then headed to Luke's 10 am therapy appointment. The plan was to get there plenty early, so that Luke could nurse & get "warmed up" before therapy.
We did pretty well & Ms. Kerry & Ms. Kate were both VERY happy to see Luke do his version of the army crawl, pivot, transition from kneeling to sitting and more!
After therapy, we headed home to wait until it was time to pick Tim up.
We picked Tim up from work at 4 and headed to Farm Fresh to get some stuff for dinner. Then we went to Tom & Peggy's house and fixed our dinner. We ate really quick before we headed to church.
We had our Sermon Small Group w/ Rachel & Garrett. It was Rachel's birthday, so I had a small piece of cake. After that Tim had to run sound & Luke & I went to Tom & Peggy's again. He needed a nap and to nurse, so I hung out there during church.
Tom picked Tim up from church & when they got back we all headed home.
Friday July 2
Friday was a lay at home and try to get something done while recovering from not-enough-rest-last-night kind of day.
Tim went to work. I made spaghetti for dinner. Dad drove down, but we didn't see him.
Saturday July 3
We spent today cleaning house, grocery shopping, visiting with Dad, cutting the grass, making homemade pizza & donuts, and relaxing a bit. Luke had a taste of homemade donut (no sugar) and he liked it! (Of course, who doesn't like fried dough.)
Wednesday June 30
I took Tim to work so that Luke and I could have the car. We got an early start & we were at Tom & Peggy's around 8:20. I had been super mega sick to my stomach (from both ends!) the night before & the only reasons we could come up with were 1.pregnant, 2. overate on cheese-less pizza, or 3. overate on cookies w/ dairy in them & was having a reaction myself So, the first thing I did at Tom & Peggy's was to take a pregnancy test to get that out of the way. Negative. Trust me this is not how I'd be announcing it if I were indeed pregnant again!
(On a side note, our only birth control right now is prayer! Ha ha, it wouldn't be the end of the world if we get pregnant & I can't take hormonal BC of any kind. I can't chart to use NFP because I don't get 3 hours of sleep in a row.)
Then Luke & I spent about 2 hours relaxing at their house, I watched t.v. and snoozed on the couch while Luke played with toys on the floor. He also nursed off and on a couple times. About 10:15 we headed over to his 11 am appointment. We were early and got called right in! We had to wait a few minutes to actually see Dr. K (a great GI if you ever need one!) I gave him Luke's history, starting with the episodes on Mother's Day & he suggested Sandifer's before I even finished telling my tale. So we discussed the best way to handle giving Luke his meds and changed his Zantac dose to 3 times a day instead of 2 and that was that.
I had to nurse Luke in the car before I could head home and I was still feeling pretty queasy to my stomach, so I cancelled my plans with Melanie for swimming & then headed home.
At home, Luke and I pretty much just took it easy.
In the afternoon we headed out to pick Tim up from work & then to church for New Member Orientation. That was pretty short & sweet and afterwards we headed to Texas Roadhouse for dinner.
Luke was talking up a storm and had the attention of all the guests dining around us!
We left there with full tummies and with all of us ready for bed!
Thursday July 1
Luke and I slept in a little later than I wanted to and Tim forgot that we had to take him to work again, so our morning was a little rough. We got it all figured out & headed off to the base.
After we dropped Tim off, Luke & I headed to Target. We got some laundry & dish detergent & some more Medela Tender Care Lanolin (what I use to pump w/ & @ $10 a pop that's no small thing!) and then headed to Luke's 10 am therapy appointment. The plan was to get there plenty early, so that Luke could nurse & get "warmed up" before therapy.
We did pretty well & Ms. Kerry & Ms. Kate were both VERY happy to see Luke do his version of the army crawl, pivot, transition from kneeling to sitting and more!
After therapy, we headed home to wait until it was time to pick Tim up.
We picked Tim up from work at 4 and headed to Farm Fresh to get some stuff for dinner. Then we went to Tom & Peggy's house and fixed our dinner. We ate really quick before we headed to church.
We had our Sermon Small Group w/ Rachel & Garrett. It was Rachel's birthday, so I had a small piece of cake. After that Tim had to run sound & Luke & I went to Tom & Peggy's again. He needed a nap and to nurse, so I hung out there during church.
Tom picked Tim up from church & when they got back we all headed home.
Friday July 2
Friday was a lay at home and try to get something done while recovering from not-enough-rest-last-night kind of day.
Tim went to work. I made spaghetti for dinner. Dad drove down, but we didn't see him.
Saturday July 3
We spent today cleaning house, grocery shopping, visiting with Dad, cutting the grass, making homemade pizza & donuts, and relaxing a bit. Luke had a taste of homemade donut (no sugar) and he liked it! (Of course, who doesn't like fried dough.)
Tuesday, June 29, 2010
More Pictures from Hospital
Falling asleep w/ Auntie Mandy on Sunday night
Attempt #1 at putting in his IV....it took 3 tries!
Monday, waiting to go home
Getting his IV taken out by our sweet nurse C
Still sleeping from the sedative on Monday
A tiny glimpse of our sick, sick neighbor baby...please pray for this nameless little fellow!
Follow Up: Luke's "Twitches"
Father's Day Weekend Pictures:
Hospital Pictures:
Well, let's just pick up where my last post left off.
Tuesday afternoon (6/22)
I called the neurologist's office & asked to talk to Dr. Toor. Now trust me I know, I wasn't going to actually TALK to the doctor himself, I just wanted to get the message to him that Luke was stil having the episodes & that we'd like to do the longer EEG. The receptionist who answered was a major you-know-what and told me to call the hospital after 5 pm when he'd be on-call.
So, that's what I did. I called & was forwarded to his voice mail at his OFFICE! Grrr...I was mad. So, we went to bed, figuring it would be the next day before they got back to us.
Wednesday 6/23
Low & behold, 8:30 am rolled around & they called to schedule Luke for the first EEG they had available. A whole day WASTED because that receptionist wouldn't just get him a message during the day. The first EEG appointment wasn't until Thursday, so we had to tough it out all through Wednesday with no news and no relief for poor Luke, who had a LOT of spasms on Wednesday.
Wednesday night Mom & Dad got into town, so Luke & I headed over to Mandy's house to visit and have dinner. Only, I ate Chic Fil A on the way because they were having tacos. We had a good visit & headed home at bedtime.
Thursday 6/24
Thursday morning we got up super early and Tim took me to the hospital. He stayed with us until after we were all checked in & then headed to work.
Luke had to get strapped down again but it wasn't as bad as last time. The woman didn't restrain his legs, just his arms, and I was able to play with him because we weren't worried about getting him to take a nap. He only cried a little bit and was relatively calm. He got his head all glued up & then all wrapped up & then he got a "kitty" book bag to keep his EEG pack in. Everything was covered in gauze so we were pretty well set.
She let me carry him into the room where they do the EEG and we took our stroller and everything in there too. There was a bed, a reclining chair, a children's table, and a t.v. We mostly hung out on the bed, since it was the easiest place for her to watch him. They also brought in an exersaucer, but I didn't put him in it too much because its hard to see his spasms when he's being all active.
We got started around 8:30-9am. Basically, Luke played on the bed w/ his bag of toys, and I watched him. For four hours. It was boring! I had to push a button every time he had a spasm, so I couldn't even relax or doze off!
Andrew from church (Rachel's "Student" Preacher) came by for a short visit & prayed over Lukey. That was around 10:30.
When the EEG was done, the doctor came in & saw us. He said that Luke's brain was perfect! He said even during the spasms there was no irregular brain wave activity, which means that Luke is NOT having seizures. They sure do look & act like seizures, but on a technical level they are NOT seizures, so we have taken to calling them "ticks, episodes, or spasms".
So, after the neurologist basically told me we were out of luck & to "wait & see", Amanda called (while I was waiting on Mom to pick us up) to tell me she found out what Luke has! Her "Auntie of the year" diagnosis is "Sandifer's Syndrome".
Basically, this gastroenterological disorder can explain ALL of Luke's "problems". Even his torticollis, it might not be my small uterus's fault! I believe that this is what Luke has & immediately started him back on his reflux medicine! Since Thursday afternoon he has still been having ticks during the afternoon & early evening hours & even into the late evening a couple times. He seems to be getting better though, because he is nursing for 30 minute stretches again.
After Mom picked us up on Thursday we pretty much just hung out at home until Tim got home. We headed to Buffalo Wild Wings in Virginia Beach for dinner with Rachel & her husband Brandon, Robby and her husband Garrett, and Stephanie and her husband Jason, all from church. It was nice. After dinner, Luke was NOT feeling well at all, so I took him for a car ride while Tim ran sound at church. We went to Wal-Mart and then back to get Tim.
*We also got Luke's super mega awesome Woodland Tale longies from Nicole of Dakine Knits in the mail!*
Friday 6/25
Friday morning I had to take Tim to work so that I could have the car to go see Mom. When we got home, I got our stuff together and let Luke rest/play. Brianna was at the house too. We managed to leave around noon to head to Amanda's to pick up Mom & then head to Mandy's work to go swimming. We got in the pool at close to 2:00 and swam until after 4:00. It was Luke's 3rd time in a pool (the other 2 were during Memorial Day weekend at Mom & Dad's ice cold hotel pool & hot tub). He LOVED it! I brought the little blow up floaty thing Chrissy bought him & he enjoyed floating around (within arm's reach) in it!
After the pool, I had to go back to the house to get Tim. Luke & I got showered and dressed and then we all headed over to Amanda's around 7 for spaghetti dinner. Chrissy was there with all 4 of her kids so it was a full house. Again, we stayed until bed time.
Around 6:30 Mom, Dad, Mandy, and Frankie all showed up. Betty (our cousin), her boyfriend (Jim), and her son (Aaron), showed up next, followed quickly by Chrissy & her brood of girls. Tim & Dad grilled chicken, we also had potato salad, potato chips, deviled eggs, corn, and drinks. It was a good birthday party & we were all exhausted by the time we headed to bed around 11.
Sunday 6/27
Sunday was Tides baseball day. It was also one of the hottest days this summer! The heat index was 105* outside. We were late (are you surprised?) to the game of course, but had planned on getting there well before the 1:15 start anyway. James, Missy, and T met us there & we had a relatively good time watching the game & trying to stay in the shade. Tim's knees got burnt but I think he's the only one. We were all SUPER mega hot by the 7th inning, so we headed to MacArthur Center for some "dinner/lunch" at Chili's. Only, now that I'm also soy free the only thing I could eat was a nasty salad.
I ended up heading out to the playground to feed Luke anyway.
From the mall we went home, got what we needed for dinner at Amanda's, fed Luke, and then headed to Mandy's house. Dad was cooking fish for everybody. I had a major headache & could NOT get rid of it. Luke was cranky from being out in the sun. We visited for a while (I spent a lot of time feeding Luke though, so missed out on the visiting.) and then headed home around 10.
Monday 6/28
Yesterday I called the pediatrician to see if she could change Luke's reflux medicine because we don't think it is lasting the 12 hours it is supposed to. She said we had to call the GI. Boo!
Luke & I stayed home all day & kind of just vegged for a while & caught up on rest. Ashley was home with us, so I was able to get some stuff done on the computer & take a shower!
Tim brought Beth & Steve home from work with him, so I had to go to the store & get some more groceries before we could cook dinner. Tim made shish-ka-bobs and corn and we all ate together. Poor Luke hadn't had any Zantac in almost 24 hours at that point & was pretty miserable. When we finally left about 7:30 to head to the pharmacy to get it & then to Tom & Peggy's for Financial Peace University he ended up crying the entire way!
I drove as fast as I could to get him there and ended up missing the entire group so that I could feed him. (I did get to watch 45 minutes of NCIS though!)
Afterwards we visited for a few minutes while Peggy snuggled Luke & then we headed home.
Tuesday 6/29
This morning I called the GI, Dr. Konikoff, to see if we could get his advice on Luke's medicine & Sandifer's and amazingly they had an 11 am appointment open tomorrow! I snatched that up nice & quickly!
Luke has had a nice 2 hour long nap, we're both showered/bathed and dressed & now we just have housework for the rest of the day. No plans this evening that I can remember so we should be able to relax for the rest of the day.
UPDATE on Luke's "Abilities":
Luke can now army crawl. He can get onto his hands/knees and rock back & forth and move himself around a little that way. He can "pivot" in circles. He will play on the floor in any room of the house & enjoys a little bit (a LITTLE BIT) of alone time! He is so smart! He can say Da, Ba, and Pa. Still no real Ma sound yet, though sometimes when he whines it sounds like Ma.
Hospital Pictures:
Well, let's just pick up where my last post left off.
Tuesday afternoon (6/22)
I called the neurologist's office & asked to talk to Dr. Toor. Now trust me I know, I wasn't going to actually TALK to the doctor himself, I just wanted to get the message to him that Luke was stil having the episodes & that we'd like to do the longer EEG. The receptionist who answered was a major you-know-what and told me to call the hospital after 5 pm when he'd be on-call.
So, that's what I did. I called & was forwarded to his voice mail at his OFFICE! Grrr...I was mad. So, we went to bed, figuring it would be the next day before they got back to us.
Wednesday 6/23
Low & behold, 8:30 am rolled around & they called to schedule Luke for the first EEG they had available. A whole day WASTED because that receptionist wouldn't just get him a message during the day. The first EEG appointment wasn't until Thursday, so we had to tough it out all through Wednesday with no news and no relief for poor Luke, who had a LOT of spasms on Wednesday.
Wednesday night Mom & Dad got into town, so Luke & I headed over to Mandy's house to visit and have dinner. Only, I ate Chic Fil A on the way because they were having tacos. We had a good visit & headed home at bedtime.
Thursday 6/24
Thursday morning we got up super early and Tim took me to the hospital. He stayed with us until after we were all checked in & then headed to work.
Luke had to get strapped down again but it wasn't as bad as last time. The woman didn't restrain his legs, just his arms, and I was able to play with him because we weren't worried about getting him to take a nap. He only cried a little bit and was relatively calm. He got his head all glued up & then all wrapped up & then he got a "kitty" book bag to keep his EEG pack in. Everything was covered in gauze so we were pretty well set.
She let me carry him into the room where they do the EEG and we took our stroller and everything in there too. There was a bed, a reclining chair, a children's table, and a t.v. We mostly hung out on the bed, since it was the easiest place for her to watch him. They also brought in an exersaucer, but I didn't put him in it too much because its hard to see his spasms when he's being all active.
We got started around 8:30-9am. Basically, Luke played on the bed w/ his bag of toys, and I watched him. For four hours. It was boring! I had to push a button every time he had a spasm, so I couldn't even relax or doze off!
Andrew from church (Rachel's "Student" Preacher) came by for a short visit & prayed over Lukey. That was around 10:30.
When the EEG was done, the doctor came in & saw us. He said that Luke's brain was perfect! He said even during the spasms there was no irregular brain wave activity, which means that Luke is NOT having seizures. They sure do look & act like seizures, but on a technical level they are NOT seizures, so we have taken to calling them "ticks, episodes, or spasms".
So, after the neurologist basically told me we were out of luck & to "wait & see", Amanda called (while I was waiting on Mom to pick us up) to tell me she found out what Luke has! Her "Auntie of the year" diagnosis is "Sandifer's Syndrome".
Basically, this gastroenterological disorder can explain ALL of Luke's "problems". Even his torticollis, it might not be my small uterus's fault! I believe that this is what Luke has & immediately started him back on his reflux medicine! Since Thursday afternoon he has still been having ticks during the afternoon & early evening hours & even into the late evening a couple times. He seems to be getting better though, because he is nursing for 30 minute stretches again.
After Mom picked us up on Thursday we pretty much just hung out at home until Tim got home. We headed to Buffalo Wild Wings in Virginia Beach for dinner with Rachel & her husband Brandon, Robby and her husband Garrett, and Stephanie and her husband Jason, all from church. It was nice. After dinner, Luke was NOT feeling well at all, so I took him for a car ride while Tim ran sound at church. We went to Wal-Mart and then back to get Tim.
*We also got Luke's super mega awesome Woodland Tale longies from Nicole of Dakine Knits in the mail!*
*And Mom fixed up the blue/brown shorties that Melanie just finished making me!! They are all ready for Lukey to wear now!*
Friday 6/25
Friday morning I had to take Tim to work so that I could have the car to go see Mom. When we got home, I got our stuff together and let Luke rest/play. Brianna was at the house too. We managed to leave around noon to head to Amanda's to pick up Mom & then head to Mandy's work to go swimming. We got in the pool at close to 2:00 and swam until after 4:00. It was Luke's 3rd time in a pool (the other 2 were during Memorial Day weekend at Mom & Dad's ice cold hotel pool & hot tub). He LOVED it! I brought the little blow up floaty thing Chrissy bought him & he enjoyed floating around (within arm's reach) in it!
After the pool, I had to go back to the house to get Tim. Luke & I got showered and dressed and then we all headed over to Amanda's around 7 for spaghetti dinner. Chrissy was there with all 4 of her kids so it was a full house. Again, we stayed until bed time.
Saturday 6/26
I had offered to host a "Father's Day" dinner at our house since nobody sent Dad anything for Father's Day. Chrissy asked if we would also make it Carolynn's birthday since that was the last time her family was all going to be together. So, we got up early and got to work preparing the house for the event. Tim & Tyler worked in the yard just about all day. Luke & I did our normal routine (bath, eat, nap, pump, shower, etc.) as well as clean the entire inside of the house & go grocery shopping. Around 6:30 Mom, Dad, Mandy, and Frankie all showed up. Betty (our cousin), her boyfriend (Jim), and her son (Aaron), showed up next, followed quickly by Chrissy & her brood of girls. Tim & Dad grilled chicken, we also had potato salad, potato chips, deviled eggs, corn, and drinks. It was a good birthday party & we were all exhausted by the time we headed to bed around 11.
Sunday 6/27
Sunday was Tides baseball day. It was also one of the hottest days this summer! The heat index was 105* outside. We were late (are you surprised?) to the game of course, but had planned on getting there well before the 1:15 start anyway. James, Missy, and T met us there & we had a relatively good time watching the game & trying to stay in the shade. Tim's knees got burnt but I think he's the only one. We were all SUPER mega hot by the 7th inning, so we headed to MacArthur Center for some "dinner/lunch" at Chili's. Only, now that I'm also soy free the only thing I could eat was a nasty salad.
I ended up heading out to the playground to feed Luke anyway.
From the mall we went home, got what we needed for dinner at Amanda's, fed Luke, and then headed to Mandy's house. Dad was cooking fish for everybody. I had a major headache & could NOT get rid of it. Luke was cranky from being out in the sun. We visited for a while (I spent a lot of time feeding Luke though, so missed out on the visiting.) and then headed home around 10.
Monday 6/28
Yesterday I called the pediatrician to see if she could change Luke's reflux medicine because we don't think it is lasting the 12 hours it is supposed to. She said we had to call the GI. Boo!
Luke & I stayed home all day & kind of just vegged for a while & caught up on rest. Ashley was home with us, so I was able to get some stuff done on the computer & take a shower!
Tim brought Beth & Steve home from work with him, so I had to go to the store & get some more groceries before we could cook dinner. Tim made shish-ka-bobs and corn and we all ate together. Poor Luke hadn't had any Zantac in almost 24 hours at that point & was pretty miserable. When we finally left about 7:30 to head to the pharmacy to get it & then to Tom & Peggy's for Financial Peace University he ended up crying the entire way!
I drove as fast as I could to get him there and ended up missing the entire group so that I could feed him. (I did get to watch 45 minutes of NCIS though!)
Afterwards we visited for a few minutes while Peggy snuggled Luke & then we headed home.
Tuesday 6/29
This morning I called the GI, Dr. Konikoff, to see if we could get his advice on Luke's medicine & Sandifer's and amazingly they had an 11 am appointment open tomorrow! I snatched that up nice & quickly!
Luke has had a nice 2 hour long nap, we're both showered/bathed and dressed & now we just have housework for the rest of the day. No plans this evening that I can remember so we should be able to relax for the rest of the day.
UPDATE on Luke's "Abilities":
Luke can now army crawl. He can get onto his hands/knees and rock back & forth and move himself around a little that way. He can "pivot" in circles. He will play on the floor in any room of the house & enjoys a little bit (a LITTLE BIT) of alone time! He is so smart! He can say Da, Ba, and Pa. Still no real Ma sound yet, though sometimes when he whines it sounds like Ma.
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