So, I'm working my way through reading other people's journeys.
Today we found out Vinnie has to be off of his Doxepin for 1 week prior to the program. Which means he won't be on it for our flight or visiting family. This gives me a lot of anxiety & I plan on talking to his doctor's tomorrow.
I'm also going to attempt to do a wet-wrap routine at home with Tim's help this weekend. I want to try it with cotton clothing & see how his skin does. He doesn't do well with cotton long term--but the wraps apparently only stay on for 2 hours at a time. I want to see if he can tolerate the cotton clothes, because if he can, that changes how we pack/shop for the trip.
I got a lot of paperwork done today. I also got a discount towards t-ball, so Lucas will still be able to play, even though he'll miss a whole month.
I need to make a bath toys bag. Something we can carry back & forth to the hospital to keep all his toys in.
I also need to buy new jars of CeraVe and Vanicream. And refill his Elidel. And Triamcinilone.
I need to ask Sarah (our coordinator) about these "nasal rinses" that I am reading about on the blog. I think its probably something similar to a neti-pot and if so that's scary. I have no idea how Vin will do with that.
Basically, learning more about the program is just SCARING the CRAP out of me. :(
While the parents are in classes/meetings/therapy where are the kids? Do they have a day-care type play room? I'll be alone with Vin at the hospital.
Do we get to use the same hospital room each day? Or do we have a different room? Do we have to carry everything back & forth?
Read my first post about Denver here!
Post 2--thoughts & questions is here.
Part 3--More prep work
Compilation of Questions to Ask Before/In Denver
Plans for Things to Do